A Catch Up Post!

It's July 27th we just did a weekend in Valley Forge. 7 months after Baylee had her 1st seizure there. We were a little nervous but the ride there but we arrived safely and the whole weekend was Wonderful! Baylee and I enjoyed the Pool, got room service, shopped at the King of Prussia Mall and got to see Harry Potter and the Half Blood Prince. The ride home was HELL we were stuck in massive traffic *bleh!*

~Baylee is doing well with her meds and has learned to swim! My pastey little White Girl is now tanned and looking like a lil Hawaiian Child!

~Tucker the Guinea Pig is a chunky little monkey who is dealing with Mason the Kitten laying on top of his cage with his arms/legs dangling into the cage! Mason is as mischievious as ever!

~I am working on lots of Crochet projects and just trying to enjoy life!

BAYLEE-isms

When Baylee first started to talk, I started keeping track of her "BAYLEE-isms" Fun or Funny Words (or phrases) she'd make up or mispronounce! I have them written down in a book somewhere in the mess we call an office, but I thought I'd try to remember a few and post them here! :D
Our favourite of course is the name of my Blog-"ibeweback" here are a few more......try to figure out what they mean and I will eventually post the translations heeheeee.....
*Varilla Coke
*Ahma
*Pampah
*Peas
*her Godmother's name-Cold
*her cousin's name-Tissue
*Camote Control
*Cucumburgers
*Camote Control
*our next door neighbour-Woo
*Camirror
*The Weegos-Antnee,Morry,Geg,Jess and Dortee

Baylee 11 1/2 years old-
LOLOLOL...... Bay was holding Mason and all of a sudden I heard her yell "Owwwwww" I asked if he scratched her and she said "No he just stepped on my growing pre-teen parts!" haaahahaaaaaa.......

.....MORE TO COME SOON!!!!!!!!!!

I am Mildly Obsessed with "Jizo"

What or who is "Jizo"????

Jizo Bodhisattva is a much beloved figure in Japan, Korea, and China, who is just becoming increasingly well known. Jizo is a special protector of children, travelers, and women. Jizo is also known to help those who are working with a life problem or physical affliction. Sounds like we need him in our life right bout now! heeeheeeee :D

Jizo is the bodhisattva who plunges fearlessly into any place or situation to help those in need. For anyone who has lost a child, Jizo is a powerful image of hope and solace. Jizo's qualities include unflagging optimism, fearlessness, and gentleness.

Jizo Bodhisattva is usually portrayed as a child-monk, often carrying a pilgrim's staff with six rings that jingle to warn animals of his approach and prevent mutual harm.

Jizo also carries the bright jewel of Dharma truth whose light banishes all fear. Jizo travels to wherever there are people who are mired in the darkness of unhappiness and fear, unable to free themselves.

Jizo is the Japanese name of this Bodhisattva, who was also known in ancient India as Kshitigarbha Bodhisattva, the Earthstore Bodhisattva, guardian of the great earth

A Bodhisattva is one who devotes his or her life to freeing others from suffering. Bodhisattvas are not worshipped, but are an inspiration to awaken to the qualities of an enlightened being that are inherent in everyone.

Seriously how CUTE is JIZO??!!??!! I feel the need to make some wee little Jizo's,will have to get out the Sculpey/Fimo. Will post some pics when I am done!

WOW what a Pain in the......

SHOULDER!!!!!!!!!!!! Ugh Tendonitis has made its way to my shoulder :( I've had it in my wrist before. But this is the first time I have had it in my shoulder. The pain has been unbearable!!!!!!
On top of this Baylee has been sick with a Cold my Poor baby!
So I have been a lil immobile laying about with arm in sling, ice packs,heating pad,Quick Flex and Tylenol! Today I was finally able to move my arm past my waist! Hoping I will be able to raise my arm above my head by this weekend!

BAYLEE BALLERINA

Dance Recitals are over as is Baylee's 5th year of Dance!!!!! Can't believe she's been dancing for 5 years now. But she LOVES it and has a Passion for it. She recieved 4 medals for Perfect attendance in Hip Hop,Jazz,Ballet and Tap, she got a 5 year Trophy AND the most amazing Surprise........ A BALLET SCHOLARSHIP!!!!!!!!!!!!!!!!!!!!!!!!!!! We are sooo Proud of her! We didn't know she was getting one and I am so happy one of the other Dance moms sneaked us up to the back of the Theater and I was able to see her get her Trophy and Scholarship letter! What made it extra special was her friends Brianna and Caitlin got one too!

CONGRATULATIONS GIRLS!!!!!

Baylee is looking forward to the next Dance year she will be taking Hip Hop, Jazz,Ballet,Tap and an extra Ballet class to prepare her for Pointe!

5 Months to the DATE...................

it's happened again!(June 15th) Baylee had another Seizure :( I had just given her, her meds she went to lie down she then sat up. I asked her if she was ok and she said "yes". She moved around a bit with her sleeping bag wrapped around her and I asked her again if she was ok and she replied "yes". I thought she'd finally lay down but she just sat there and started staring and I knew it was happening again :( I immediately called Michael and he in turn called the Neurologist. All the time I was talking to her and holding her. Michael called for an ambulance and the Neuro was telling him to tell me to get her on her side but she had her arms clenched so hard she was as stiff as a Board! She was semi on her side anyways. The Police arrived and shortly after the ambulance. By that time she was slowly coming out of it. It lasted 10 minutes this time. While the Police was getting info from me she was ready to just go to sleep! LOL The Paramedic came in and carried her in his arms to the Ambulance I grabbed some clothes, her "baby" Cookie Monster,her BAB Tiger Kelsey and headed for the ambulance. She was taken to Winthrope Hospital which has a Pediatric ER. She was observed and given a Blood and Urine test. 4 hours later we were told her Med levels were low and we were to go see her Neuro as soon as she was released. So as soon as she was released we went to Dr Grossmanns Office. He gave her an exam and upped her Meds to 2 in the Morn (instead of just 1) in addition to the 2 at night and gave us a script for DIASTAT (which I hope we NEVER have to use!). It was a Stressful day!

Not sure how or why her Med levels were low. We were just at his office a week before and they were perfect! She had just started to give herself her Meds under our supervision, though 1 day she did it herself whilst I was in the bathroom and Michael was downstairs. We were thinking she may have thought she took it and didn't. The only other thing we can think of is she'd been crazy active the past week-Extra dance rehersals, recital, Dance classes.....maybe it just all caught up to her! BUT..she is fine now Thank GOD!!!! She got through her last recital on the 19th and Homeschooling is over! So we are looking forward to a relaxing Fun Summer!!!!!

Baylee's Seizure Disorder-Absence Seizures

Up until January 15th, 2010 my daughter Baylee has been a relatively healthy child. Just so happened in November 2009 she had a fever for the first time in like 3 years!!! Yup 3 years, she usually gets an annual cold but that is about it! We have been very lucky,very blessed.
On January 15th,2010 we headed for a weekend Business Conference for Michael in Valley Forge, PA.
After a 3 hr drive we arrived at the conference center. I napped but was semi concious when we arrived as I heard Michael ask Baylee if she wanted a cot for the room. I heard her reply "Yes" as we pulled to the front of the hotel. As usual Michael went to check us in as Baylee and I stayed in the car to wait for him and a Bell Hop, and as usual I ask her "how was the ride?" but this time I didn't get an answer. I turned to her and she was staring at me, so I asked her again and she was just staring a me not saying a word. I called her name and even tickled her but NOTHING. I actually thought she was kidding around with me and told her "if this is a joke it's NOT funny" but she still continued to just stare. It was like she was looking at me but looking through me. I started to panic and screamed for Michael thinking he could actually hear me though the double glass doors! I got my Cell and called him. By now I was on the drivers side of the Van calling her name with still no response though she did turn her head to me. Michael came running out and into the passenger side of the van and called her name and she turned to him, a minute after she looked at him her head slowly rolled back to the right and started shaking, her mouth looked like a fish gasping for air. We thought she was having a stroke. In all the commotion someone called for an ambulance thankfully because we were wrecks! The head shaking lasted about a minute or 2, a young man who was training to be an EMT came and looked at her, she was still staring and when he asked her what her name was,we could clearly see she was trying to answer but couldn't. He got her to drink some water but she was still pretty out of it.
The Ambulance came and she was loaded in. I was able to go but Michael had to drive there. In the Ambulance she was still out of it until she saw the needle they were going to put in her for the IV, it was then she said her first words since saying "YES" to the cot. She screamed-"NO!"
and then started crying. So I knew then she was back! She was taken to Phoenixville Hospital
a very small hospital compared to our NYC hospitals. After an hour or so (LOL the nurse kept coming and telling us they were having a busy day, we took a look in the halls NO ONE was about, she noticed us looking around and said "oh you're from NY this is busy for us" LOL) Baylee was given an EKG, taken for a CAT scan and Xrays, they also took Blood and Urine. The doctor finally came in to tell us that all her tests came back normal except for her xray which showed a slight curve in her spine and after a conference call with The Children's Hospital of Philadelphia she could be released! We were told she may never have another seizure again, or she could have one in a week, a month, a year. We needed to follow up with her Ped and a Pediatric Neurologist.
We made the decision to stay in Valley Forge instead of subjecting Baylee to a 3 hr ride back home and of course she didn't want to miss going to The King of Prussia Mall for a day of spoiling! Thankfully the hotel was kind enough to hold our room for us! Thank you to them!!!
And HUGE HUGE HUGE Thank Yous to our dear Friend Heather for being the ear for me to cry to and for posting asking for prayers from our FB friends and family!!!! LOVE YOU HEATHER!!!!!
Bay was treated to a Shopping Spree at the King of Prussia Mall
the next day as we kept a watchful eye on her. We got back home Sunday night, by Monday we had an appointment with her Ped for Tuesday and then an appointment with a Pediatric Neurologist shortly after. She was scheduled for a MRI and an EEG and a 24 hr EEG.
Her MRI came out normal her EEGs did not :( her EEGs showed that she was having 3-4 second seizures through out her brain pretty much all day mostly at night and while she was sleeping. These type of seizures are called Absence Seizures. (When we thought back to a year or so ago I was having an issue schooling her, she wasn't paying attention, she'd kinda space out, she wasn't remembering her lessons well and I just assumed she was being a lil rebel and brushing off her work,
little did we know what was really going on in/with her brain)
Since they are happening to her so frequently her neurologist
immediately put her on Depakote. Thank GOD for sprinkle Caps...there was NO WAY she was swallowing any pills and she can take her meds with Pudding or Yogurt! :D

So here we are June 8th,2010, Baylee had a Neuro appointment in the
Morn and her Liver function,medication level,cell counts all normal! She
needs an EEG in office and 24 hr and blood work in August, then back to
the Neuro in September!!!!
All in all she is doing really well, leading a pretty normal active life! She does Girl Scouts and Dance Classes and despite her lack of memory skills we worked really hard the past 2 months for her to ace the PASS test! We are so very PROUD of her!!!!

Life thus Far.....

It's been 3 years since I started this blog and have done NOTHING with it! A lot has happened in those years. Maybe this will be the year I actually blog! So where to start......my daughter is now 11 1/2 years old, she's just about completed her 5 th grade year of Homeschooling and she's excelling in Dance! She takes Hip Hop,Jazz,Ballet and Tap. This coming September she will add one more Ballet class to prep her for Pointe Classes!
We adopted a Guinea Pig named Tucker in June of 2009.

In January 2010, Baylee had a (first time ever) Seizure while we were in Valley Forge, PA. It was an extremely scary situation for us all. She's since been diagnosed with a Seizure Disorder known as Absence Seizures.

In February we had to put our 15 1/2 year old beloved cat Tyler to sleep :(


But happiness found it's way back to our home this past May when we adopted a 6-7 month old kitten that Baylee named Mason Oliver! He is an affectionate little ball of energy!
And here we are about to start the Summer of 2010. We look forward to some Wonderful Adventures to share here!